Privacy Policy

At DKMS we are committed to respecting your privacy and recognize your need for appropriate protection and management of personally identifiable information you share with us (the phrases "personally identifiable information" or "personal information" mean any information by which you can be identified, such as your name, address, telephone number, etc.). The purpose of this Privacy Policy is to inform you what personally identifiable information or personal information DKMS may collect from you when you visit or any subdomain thereof (the "Website"), how we use such information, and the choices you have regarding our use of, and your ability to review and correct, the information.

For purposes of this Privacy Policy, DKMS and any of its principals, officers, employees or agents are herein collectively referred to as "DKMS." This policy applies only to users accessing the Website from the United States.

Please read this Privacy Policy carefully to understand what we do with the personal information that we collect as part of your interaction with the Website. By using this Website, you are accepting the practices described in this Privacy Policy. If you do not agree to this Privacy Policy, please do not use this Website. Please also read our Terms of Use carefully to learn of other terms and conditions applicable to your use of this Website.

DKMS reserves the right to change, modify, add or remove portions of this Privacy Policy at any time for any reason. Such changes shall be effective immediately upon posting at this URL, and shall apply retroactively to any information previously collected by DKMS . Please check the Privacy Policy each time you visit this Website for the most current version. You acknowledge that by accessing this Website after DKMS has posted changes to this Privacy Policy, you are agreeing to the terms of the Privacy Policy as modified.

Collecting Information About You

In general, you can visit many of the pages on this Website without telling us who you are or revealing any personal information about yourself. However, there may be times at which we may ask you to provide personal information. If you register to become a potential bone marrow or peripheral blood stem cell donor, we require that you provide certain personally identifiable information including your name, address and phone number. If you choose to make a monetary donation, we also require that you provide your credit card information. We need this information to process your registration or monetary donation, and to contact you in connection with that registration or monetary donation.

If you register as a potential bone marrow or peripheral blood stem cell donor, you will be asked to provide additional health and contact information if you are identified as a possible match for a patient. Use by DKMS of any such additional information will be governed by the terms of the Notice of Privacy Practices, which is accessible here.

In addition to the information that you choose to provide to us through this Website, we may also collect certain non-personally identifiable information, such as the number and frequency of visitors to the Website, the type of Internet browser you are using, the domain name of your Internet service provider and your Internet Protocol address. We may use such data to record and analyze usage information and to otherwise improve the Website.

Using Information About You

When you provide us with personally identifiable information, you acknowledge that we may use it for various internal purposes, including, but not limited to: informing you that you may be a potential match, providing you with educational information regarding becoming a donor, keeping our donor registration current, responding to your inquiries about our offerings and informing you of news and events, services and offers, providing you with information about DKMS, including regarding fundraising activities and educational initiatives, and in any other manner that we deem necessary or desirable to enhance your experience with the Website and related products and services. If you provide us with your e-mail address, we may send you information or newsletters about news, new features and additions, and changes to the Website. If you provide us with your e-mail address but subsequently decide that you do not wish to receive certain e-mails, you may click the "unsubscribe" button at the top and/or bottom of such e-mails.

Sharing Information About You

If you register to become a donor, you will be assigned a unique donor ID number. The only information that we share with national and international donor registries, such as the federally authorized C.W. Bill Young Cell Transplantation Program, the Be the Match Registry® (operated by the NMDP), and the ZKRD (German bone marrow donor registry, accessible for patients worldwide), as well as the lab that tests your cheek swab sample, is this unique donor ID number, as well as any other information that is necessary to match your typing results with a patient.

DKMS will not sell, rent or lease your personally identifiable information to others. Unless DKMS has your permission or is required by law, the personal information you provide us online will be shared only with our affiliated entities, some of which may be located outside of the United States (including Deutsche Knochenmarkspenderdatei (DKMS Germany)), and companies or persons that provide us with certain services including credit card processing, shipping, data management, promotional services, etc. We provide these service providers with the information needed for them to perform these services. We also ask our service providers to confirm that their privacy practices are consistent with ours.

DKMS may access, preserve and disclose your information if required to do so by law or to: (a) respond to your requests for customer service; (b) comply with legal process; (c) enforce our Terms of Use; (d) respond to claims that information you have provided violates the rights of others; or (e) protect the rights, property or personal safety of DKMS, its users and the public.

In addition, we may disclose your information to the government or private parties in connection with a lawsuit, subpoena, investigation, regulatory examination or similar proceedings. We may also disclose such information where we believe it is necessary to investigate, prevent or take action regarding illegal activities, suspected fraud, situations involving potential threats to the physical safety of any person, violations of our Terms of Use, to verify or enforce compliance with the policies governing the Website and applicable laws, or as otherwise required or permitted by law, litigation, regulations, or public and government authorities or consistent with legal requirements.

Editing, Updating, Correcting and Deleting Information About You

We want to communicate with you only if you want to hear from us. If you prefer not to receive information from us, please let us know by calling us at (866) 340-3567 or by sending us an e-mail at Please be sure to include your e-mail address, full name, and specifically what information you do not want to receive. If you would like to update or correct your phone number, e-mail address, street address or other personal information with us please contact us the same way. Please note that sometimes these requests may take up to 6-8 weeks to be effective, particularly if we are removing your name from postal mailings.

Disclosure - Newsletter and Information

As a potential donor you will receive regular newsletters, medical information, process-related updates and general information about DKMS.

If you don't want to receive further e-mails, you can unsubscribe by sending an e-mail to with the subject "NONEWS”


Like many other websites, this Website uses "cookies." A cookie is a small amount of data that is sent to your browser from a web server and stored on your computer's hard drive. Generally, we use cookies to remind us of who you are, tailor our communications to suit your personal interests, estimate our audience size and/or analyze your visiting patterns. Cookies can be used to collect anonymous data and serve the user with specifically targeted ads, and may be used to communicate with Twitter, Facebook, Google + or other third party sites in connection with the “share” or “like” buttons for these third party sites. We do not use cookies to read any data or files in your computer. You can generally set your browser to not accept cookies or to notify you when you are sent a cookie, giving you the chance to decide whether or not to accept it.

DKMS uses Google Analytics, a web analysis service from Google Inc., on this Website. Google Analytics uses cookies to evaluate the use of the Website by its visitors, to compile reports about the activities of the visitors on the Website, and to provide other services related to usage of the Website and the internet. Google may also transmit this information to third parties if this is legally required or if third parties process these data on behalf of Google. Google guarantees that your IP address will not be linked to other Google data in any way.

The Website uses the Google AdWords remarketing service to advertise on third party websites (including Google) to previous visitors to our site. You can set preferences for how Google advertises to you using the Google Ad Preferences page. DKMS also uses the free conversion tracking function by Google AdWords on this Website. According to Google's policy, if a user clicks on an ad, Google places a cookie on that user’s computer, which expires after 30 days. Google does not associate the search activity of a user to his or her ad click history. Furthermore, according to Google's policy, Google does not collect or track any personally identifying information and does not disclose personal information to third parties. Users who do not wish to participate in tracking can deactivate Google’s conversion tracking cookie using their preferences settings of their browser. These users will not be included in the conversion tracking statistics. Any such use will be subject to Google's privacy policy, which is accessible here.

Do Not Track

Do Not Track ("DNT") is a privacy preference that users can set in their browsers to let third parties know that they do not want to be tracked online. You can disable or enable this setting by changing the DNT settings in your browser. We do not track users over time and across third party websites, and therefore do not respond to DNT signals, and except in the case of analytics cookies as described above, our website limits tracking to the internal uses described above. DKMS does not authorize the collection of personally identifiable information about users for third party use through advertising technologies without user consent. However, some third party sites, including potentially those that have content embedded on this Website or to which this Website links, may keep track of your browsing activities and may set cookies on your browser. Please review their privacy policies to understand how you may be tracked. As noted, since our site does not respond to DNT signals you may have set in your browser, we cannot fully control what third parties may do.

Children Under the Age of 13

This Website is not intended for children under 13 years of age, and we do not knowingly collect personal information from children under 13. If we learn we have collected or received personal information from a child under 13 without verification of parental consent, we will delete that information. If you believe we might have any information from or about a child under 13, please contact us at


We use encryption and authentication tools to protect the security of your personal information that you share with us. Unfortunately, however, no data transmission over the Internet can be guaranteed to be 100% secure. As a result, while we strive to protect your personal information, we cannot guarantee or warrant the security of any information you transmit to or from this Website, and you do so at your own risk. Once we receive your transmission, we will do our best to protect its security on our systems.

Links to Third Party Sites

This Website may contain links to websites operated and maintained by third parties, over which we have no control. Privacy policies on such linked sites may be different from our privacy policy. You acknowledge that you should always read the privacy policy of a linked site before disclosing any personal information on such site, and that you access such linked sites at your own risk. DKMS HEREBY DISCLAIMS ANY AND ALL LIABILITY FOR ANY TYPE OF DAMAGES INCLUDING, BUT NOT LIMITED TO, INDIRECT, INCIDENTAL, CONSEQUENTIAL OR SPECIAL DAMAGES, OR LOSSES OR EXPENSES, FOR THE ACTIONS AND CUSTOMER INFORMATION PRACTICES OF ANY WEBSITE TO WHICH THIS WEBSITE LINKS OR REFERS.

Please be assured that we take your concerns about privacy quite seriously. If you have any questions about our Privacy Policy or the Notice of Privacy Practices, please e-mail us at