We will use your health information for treatment.
For example: Information obtained by a nurse, physician, or other member of the donation team at an accredited healthcare facility will be recorded in your medical record and used to manage the donation process. This information is vital to several entities involved in the donation process, and to ensure the best treatment to patients in need of transplant.
We will use your health information for payment.
For example: DKMS covers all donation-related medical expenses; as a donor you will not be responsible for the payment of any bills issued for services provided. However, the information on a bill may include information that identifies you, as well as diagnosis codes, procedures, and supplies used.
We will use your health information for regular operations.
For example: Members of the DKMS staff may use information in your health record to assess your case. This information will then be used in an effort to continually improve the quality and effectiveness of the services we provide.
Third Parties: There are some services provided in our organization through contracts with third parties. Examples include: physician services, health care agencies, laboratories, document storage and shredding companies. When these services are contracted, we may disclose your health information to such third parties so that they can perform the job we’ve asked them to do. To protect your health information, we require that the third party appropriately safeguard your information and we have contracts in place that specify their obligation to our company.
Research: We may disclose information to researchers when their research has been approved by an institutional review board that has reviewed the research proposal and established protocols to ensure the privacy of your health information. You do have the right to refuse to participate in research.
Marketing: We may contact you to provide invitations to various events that we coordinate, in an effort to continue to grow and maintain our organization and our mission. Additionally, if authorized, we may use your name, likeness and personal story in activities related to raising public awareness of, and funds for, DKMS. You will not receive any monetary compensation from DKMS for authorizing the use of your name, photograph, likeness and personal story and any reimbursement for expenses will be arranged separately. If you should no longer wish to have your image appear in our materials, please contact DKMS immediately. Due to the distribution and printing guidelines, DKMS may not be able to remove your image immediately from its materials, but will do so as soon as those printed pieces are scheduled for reprinting. Please note that print materials already distributed to public audiences may not be recalled once distributed.
Fundraising: As a nonprofit organization, we may contact you as part of a fundraising effort. You may decide to contribute to our cause, and whether you contribute in person, online, or via mail, we will never share your personal information.
Food and Drug Administration (FDA): We may disclose to the FDA health information related to adverse events that might be associated with the donation process. Public health: As required by law, we may disclose your health information to public health or legal authorities charged with preventing or controlling disease, injury, or disability.